Helvede

(((Cindy Weinstein)))The memoir I wrote with <a href="https://zirk.us/tags/UCSF" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#UCSF</a> <a href="https://zirk.us/tags/neurologist" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#neurologist</a>, Dr. Bruce Miller, Finding the Right Words: A Story of Literature, Grief, and the Brain is now available through the HFC website. Please check out the bookshop and see the other books on <a href="https://zirk.us/tags/caregiving" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#caregiving</a> and <a href="https://zirk.us/tags/brain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#brain</a> health. Thank you to <a href="https://zirk.us/tags/LaurenMillerRogen" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LaurenMillerRogen</a> and <a href="https://zirk.us/tags/SethRogen" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SethRogen</a> for your advocacy and profound generosity. <a href="https://bookshop.org/shop/WeAreHFC" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://bookshop.org/shop/WeAreHFC</a><a href="https://zirk.us/tags/EndAlz" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EndAlz</a>

(((Cindy Weinstein)))<a href="https://zirk.us/tags/3GoodThings" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#3GoodThings</a> 1. Seth Rogen spoke up for science to the techbros whose $ supports an autocracy dedicated to the evisceration of research that makes our lives better by alleviating suffering. Zuckerberg, Bezos et al were there to celebrate the Breakthrough Prize, & Rogen called them out on their bad, bad faith. <a href="https://zirk.us/tags/Hero" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Hero</a>2. I moderated a grief support group for the Rogens' foundation, HFC. The meeting helped some people who were having a hard time. <a href="https://zirk.us/tags/EndAlz" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EndAlz</a>3. This bougainvillea <a href="https://zirk.us/tags/Bloomscrolling" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Bloomscrolling</a>

(((Cindy Weinstein)))My <a href="https://zirk.us/tags/website" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#website</a> went live yesterday and I want to share it (again) because I'm so pleased with how it came out. There are links to some of the <a href="https://zirk.us/tags/dementia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#dementia</a> outreach presentations I've done, as well as some very pretty images. Hope you take a look and like!<a href="https://www.professorcindy.com/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.professorcindy.com/</a><a href="https://zirk.us/tags/EndAlz" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EndAlz</a> <a href="https://zirk.us/tags/Literature" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Literature</a>

(((Cindy Weinstein)))The "prodromal" phase of <a href="https://mastodon.world/tags/Alzheimer" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Alzheimer</a>'s can last 15-20 years; that is, the brain is being invaded -- slowly -- before clinical presentations appear (for example, word-finding; memory; spatial disorientation). Check out this explanation of a new blood test whose predictive accuracy seems extraordinary. <a href="https://mstdn.social/@erictopol" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@erictopol</a> also discusses the benefits of intervening early and addressing <a href="https://mastodon.world/tags/modifiableriskfactors" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#modifiableriskfactors</a> .Thank you <a href="https://awscommunity.social/@cobalt" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@cobalt</a> for directing me to this article.<a href="https://erictopol.substack.com/p/the-breakthrough-blood-test-for-alzheimers" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://erictopol.substack.com/p/the-breakthrough-blood-test-for-alzheimers</a><a href="https://mastodon.world/tags/EndAlz" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EndAlz</a>

(((Cindy Weinstein)))Keeping Each Other Company is the monthly grief support group I lead, thanks to <a href="https://mastodon.world/tags/HFC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HFC</a> (Lauren Miller Rogen and Seth Rogen's foundation established in honor of Lauren's mother who died of early-onset Alzheimer's). We meet next week. If you are or were a <a href="https://mastodon.world/tags/caregiver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#caregiver</a> to someone w/#dementia & would like a space to share your feelings &/or hear others' share theirs, please use this google doc & HFC will match you with the group that fits your needs best.<a href="https://mastodon.world/tags/EndAlz" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EndAlz</a> <a href="https://mastodon.world/tags/Caregiving" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Caregiving</a> <a href="https://docs.google.com/forms/d/e/1FAIpQLSeU6Waw5K_qdJ2AvowQwjNUORcAus16weFE2AsLpxYtCvrR9w/viewform" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://docs.google.com/forms/d/e/1FAIpQLSeU6Waw5K_qdJ2AvowQwjNUORcAus16weFE2AsLpxYtCvrR9w/viewform</a>

(((Cindy Weinstein)))Keeping Each Other Company is the monthly grief support group I lead, thanks to <a href="https://zirk.us/tags/HFC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HFC</a> (Lauren Miller Rogen and Seth Rogen's foundation established in honor of Lauren's mother who died of early-onset Alzheimer's). We meet next week. If you are or were a <a href="https://zirk.us/tags/caregiver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#caregiver</a> to someone w/#dementia & would like a space to share your feelings &/or hear others' share theirs, please use this google doc & HFC will match you with the group that fits your needs best.<a href="https://zirk.us/tags/EndAlz" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EndAlz</a> <a href="https://zirk.us/tags/Caregiving" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Caregiving</a> <a href="https://docs.google.com/forms/d/e/1FAIpQLSeU6Waw5K_qdJ2AvowQwjNUORcAus16weFE2AsLpxYtCvrR9w/viewform" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://docs.google.com/forms/d/e/1FAIpQLSeU6Waw5K_qdJ2AvowQwjNUORcAus16weFE2AsLpxYtCvrR9w/viewform</a>

(((Cindy Weinstein)))Today's cuts to <a href="https://zirk.us/tags/Alzheimers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Alzheimers</a> research coming up in Booker's filibuster. -- Thank you Senator <a href="https://zirk.us/tags/Cortez" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Cortez</a>-Masto of Nevada for sharing the story of your grandmother who died of Alzheimer's. As you say, this is personal.<a href="https://zirk.us/tags/EndAlz" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EndAlz</a> <a href="https://zirk.us/tags/CoryBooker" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CoryBooker</a>

(((Cindy Weinstein)))Today's cuts to <a href="https://mastodon.world/tags/Alzheimers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Alzheimers</a> research coming up in Booker's filibuster. -- Thank you Senator <a href="https://mastodon.world/tags/Cortez" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Cortez</a>-Masto of Nevada for sharing the story of your grandmother who died of Alzheimer's. As you say, this is personal.<a href="https://mastodon.world/tags/EndAlz" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EndAlz</a> <a href="https://mastodon.world/tags/CoryBooker" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CoryBooker</a>

(((Cindy Weinstein)))I am leading a monthly grief support group "Keeping Each Other Company: <a href="https://zirk.us/tags/Caregiving" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Caregiving</a> and <a href="https://zirk.us/tags/Grief" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Grief</a>" over Zoom for <a href="https://zirk.us/tags/HFC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HFC</a>, the foundation established by Lauren Miller Rogen & Seth Rogen in honor of Lauren's mother, Adele, who died of early-onset <a href="https://zirk.us/tags/Alzheimer" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Alzheimer</a>'s. If this is something you think might be helpful, just fill out the the form below & and someone from HFC will reach out. If the group I am moderating isn't the right fit, you will see many other options. 💜 <a href="https://docs.google.com/forms/d/e/1FAIpQLSeU6Waw5K_qdJ2AvowQwjNUORcAus16weFE2AsLpxYtCvrR9w/viewform?pli=1" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://docs.google.com/forms/d/e/1FAIpQLSeU6Waw5K_qdJ2AvowQwjNUORcAus16weFE2AsLpxYtCvrR9w/viewform?pli=1</a><a href="https://zirk.us/tags/EndAlz" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EndAlz</a>

(((Cindy Weinstein)))I am leading a monthly grief support group "Keeping Each Other Company: <a href="https://mastodon.world/tags/Caregiving" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Caregiving</a> and <a href="https://mastodon.world/tags/Grief" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Grief</a>" over Zoom for <a href="https://mastodon.world/tags/HFC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HFC</a>, the foundation established by Lauren Miller Rogen & Seth Rogen in honor of Lauren's mother, Adele, who died of early-onset <a href="https://mastodon.world/tags/Alzheimer" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Alzheimer</a>'s. If this is something you think might be helpful, just fill out the the form below & and someone from HFC will reach out. If the group I am moderating isn't the right fit, you will see many other options. 💜 <a href="https://docs.google.com/forms/d/e/1FAIpQLSeU6Waw5K_qdJ2AvowQwjNUORcAus16weFE2AsLpxYtCvrR9w/viewform?pli=1" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://docs.google.com/forms/d/e/1FAIpQLSeU6Waw5K_qdJ2AvowQwjNUORcAus16weFE2AsLpxYtCvrR9w/viewform?pli=1</a><a href="https://mastodon.world/tags/EndAlz" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EndAlz</a>

(((Cindy Weinstein)))It was an honor to be a panelist on <a href="https://zirk.us/tags/Dementia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Dementia</a> Stories for Impact: Dementia Life Course and Storytelling, sponsored by the <a href="https://zirk.us/tags/AlzheimersAssociation" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#AlzheimersAssociation</a> and <a href="https://zirk.us/tags/UCSF" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#UCSF</a>. My fellow authors and colleagues talked about the importance of <a href="https://zirk.us/tags/narrative" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#narrative</a>, <a href="https://zirk.us/tags/empathy" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#empathy</a>, <a href="https://zirk.us/tags/brain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#brain</a> health, and Dr. Bruce Miller and I talked about our work together on my <a href="https://zirk.us/tags/memoir" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#memoir</a>, Finding the Right Words: A Story of Literature, Grief, and the Brain. I hope you find this discussion helpful. <a href="https://lnkd.in/g-mgqkkN" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://lnkd.in/g-mgqkkN</a><a href="https://zirk.us/tags/EndAlz" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EndAlz</a> <a href="https://zirk.us/tags/Caregiving" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Caregiving</a>

(((Cindy Weinstein)))It was an honor to be a panelist on <a href="https://mastodon.world/tags/Dementia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Dementia</a> Stories for Impact: Dementia Life Course and Storytelling, sponsored by the <a href="https://mastodon.world/tags/AlzheimersAssociation" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#AlzheimersAssociation</a> and <a href="https://mastodon.world/tags/UCSF" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#UCSF</a>. My fellow authors and colleagues talked about the importance of <a href="https://mastodon.world/tags/narrative" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#narrative</a>, <a href="https://mastodon.world/tags/empathy" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#empathy</a>, <a href="https://mastodon.world/tags/brain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#brain</a> health, and Dr. Bruce Miller and I talked about our work together on my <a href="https://mastodon.world/tags/memoir" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#memoir</a>, Finding the Right Words: A Story of Literature, Grief, and the Brain. I hope you find this discussion helpful. <a href="https://lnkd.in/g-mgqkkN" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://lnkd.in/g-mgqkkN</a><a href="https://mastodon.world/tags/EndAlz" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EndAlz</a> <a href="https://mastodon.world/tags/Caregiving" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Caregiving</a>

(((Cindy Weinstein)))The Alzheimer's Association has uploaded the video of the "Narrative Showcase: Dementia, Life Course, and Storytelling." Here is the link. You just need to register and it is free to watch. I hope you find it valuable.<a href="https://training.alz.org/products/4871/narrative-showcase-dementia-life-course-and-storytelling" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://training.alz.org/products/4871/narrative-showcase-dementia-life-course-and-storytelling</a><a href="https://zirk.us/tags/EndAlz" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EndAlz</a> <a href="https://zirk.us/tags/Dementia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Dementia</a> <a href="https://zirk.us/tags/NarrativeMedicine" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NarrativeMedicine</a>

(((Cindy Weinstein)))The Alzheimer's Association has uploaded the video of the "Narrative Showcase: Dementia, Life Course, and Storytelling." Here is the link. You just need to register and it is free to watch. I hope you find it valuable.<a href="https://training.alz.org/products/4871/narrative-showcase-dementia-life-course-and-storytelling" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://training.alz.org/products/4871/narrative-showcase-dementia-life-course-and-storytelling</a><a href="https://mastodon.world/tags/EndAlz" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EndAlz</a> <a href="https://mastodon.world/tags/Dementia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Dementia</a> <a href="https://mastodon.world/tags/NarrativeMedicine" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NarrativeMedicine</a>

(((Cindy Weinstein)))If you are a <a href="https://mastodon.world/tags/caregiver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#caregiver</a> to someone w/ <a href="https://mastodon.world/tags/dementia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#dementia</a> & are feeling sad, feeling nothing at all, feeling like a sympathetic ear might help, please come to "Keeping Each Other Company: <a href="https://mastodon.world/tags/Caregiving" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Caregiving</a> and <a href="https://mastodon.world/tags/Grief" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Grief</a>" today at 11 am PT, 2 pm ET. HFC has given me the opportunity to help by leading this monthly support group. Today is our 1st meeting. Please fill out the form below and someone will be in touch once you've submitted it.<a href="https://docs.google.com/forms/d/e/1FAIpQLSeU6Waw5K_qdJ2AvowQwjNUORcAus16weFE2AsLpxYtCvrR9w/viewform" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://docs.google.com/forms/d/e/1FAIpQLSeU6Waw5K_qdJ2AvowQwjNUORcAus16weFE2AsLpxYtCvrR9w/viewform</a><a href="https://mastodon.world/tags/EndAlz" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EndAlz</a>

(((Cindy Weinstein)))If you are a <a href="https://zirk.us/tags/caregiver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#caregiver</a> to someone w/ <a href="https://zirk.us/tags/dementia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#dementia</a> & are feeling sad, feeling nothing at all, feeling like a sympathetic ear might help, please come to "Keeping Each Other Company: <a href="https://zirk.us/tags/Caregiving" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Caregiving</a> and <a href="https://zirk.us/tags/Grief" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Grief</a>" today at 11 am PT, 2 pm ET. HFC has given me the opportunity to help by leading this monthly support group. Today is our 1st meeting. Please fill out the form below and someone will be in touch once you've submitted it.<a href="https://docs.google.com/forms/d/e/1FAIpQLSeU6Waw5K_qdJ2AvowQwjNUORcAus16weFE2AsLpxYtCvrR9w/viewform" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://docs.google.com/forms/d/e/1FAIpQLSeU6Waw5K_qdJ2AvowQwjNUORcAus16weFE2AsLpxYtCvrR9w/viewform</a><a href="https://zirk.us/tags/EndAlz" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EndAlz</a>

(((Cindy Weinstein)))This Wednesday at 2pm ET/11 am PT, I'm honored to be leading the inaugural monthly support group -- "Keeping each other Company: <a href="https://mastodon.world/tags/Caregiving" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Caregiving</a> and <a href="https://mastodon.world/tags/Grief" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Grief</a>" -- for <a href="https://mastodon.world/tags/HFC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HFC</a>, an extaordinary foundation established by <a href="https://mastodon.world/tags/LaurenMillerRogen" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LaurenMillerRogen</a> & <a href="https://mastodon.world/tags/SethRogen" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SethRogen</a> in honor of Lauren's mother Adele who died of early-onset <a href="https://mastodon.world/tags/Alzheimer" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Alzheimer</a>'s. Please join me -- it's on Zoom -- if you are looking for a space to share your feelings, tell your story, or just want to listen to others.<a href="https://mastodon.world/tags/EndAlz" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EndAlz</a>

(((Cindy Weinstein)))This Wednesday at 2pm ET/11 am PT, I'm honored to be leading the inaugural monthly support group -- "Keeping each other Company: <a href="https://zirk.us/tags/Caregiving" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Caregiving</a> and <a href="https://zirk.us/tags/Grief" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Grief</a>" -- for <a href="https://zirk.us/tags/HFC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HFC</a>, an extaordinary foundation established by <a href="https://zirk.us/tags/LaurenMillerRogen" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LaurenMillerRogen</a> & <a href="https://zirk.us/tags/SethRogen" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SethRogen</a> in honor of Lauren's mother Adele who died of early-onset <a href="https://zirk.us/tags/Alzheimer" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Alzheimer</a>'s. Please join me -- it's on Zoom -- if you are looking for a space to share your feelings, tell your story, or just want to listen to others.<a href="https://zirk.us/tags/EndAlz" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EndAlz</a>

(((Cindy Weinstein)))Jerry, my dad, who died almost 30 years ago, was born today in 1927. Here I am with him -- he had lost just about all of his words and I had none to express the grief of watching him suffer. I think about him everyday, miss him so much, and do everything I can to be the best version of the person he (and my mother) raised me to be.<a href="https://mastodon.world/tags/EndAlz" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EndAlz</a>

(((Cindy Weinstein)))Jerry, my dad, who died almost 30 years ago, was born today in 1927. Here I am with him -- he had lost just about all of his words and I had none to express the grief of watching him suffer. I think about him everyday, miss him so much, and do everything I can to be the best version of the person he (and my mother) raised me to be.<a href="https://zirk.us/tags/EndAlz" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EndAlz</a>

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