#MEAwarenessHour

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AnnaFinally got dr permission for IV magnesium. I don’t absorb it any other way.Problem is that can’t find anyone to come out here for less than $600 (check cost of wellness clinics in Melbourne. Expensive or not at all.)If you are a <a href="https://disabled.social/tags/nurse" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#nurse</a> or have experience running a drip, please reply/DM.Changes my life from bedridden to 60% of normal in a few months!<a href="https://disabled.social/tags/Melbourne" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Melbourne</a> <a href="https://disabled.social/tags/Australia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Australia</a>Please <a href="https://disabled.social/tags/boost" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#boost</a><a href="https://disabled.social/tags/PWME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PWME</a> <a href="https://disabled.social/tags/PWLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PWLC</a> <a href="https://disabled.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://disabled.social/tags/Migraine" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Migraine</a> <a href="https://disabled.social/tags/MEAwarenesshour" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEAwarenesshour</a> <a href="https://disabled.social/tags/pots" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pots</a> <a href="https://disabled.social/tags/Dysautonomia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Dysautonomia</a><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/dysautonomia" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@dysautonomia</a>

AnnaDesperately seeking <a href="https://disabled.social/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#disability</a> <a href="https://disabled.social/tags/advocate" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#advocate</a>.None in my catchment. <a href="https://disabled.social/tags/Melbourne" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Melbourne</a> <a href="https://disabled.social/tags/Australia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Australia</a>What can I do? I’ve followed *every* lead.Waiting 2 years. Help.<a href="https://disabled.social/tags/FDV" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#FDV</a> <a href="https://disabled.social/tags/MEAwarenessHour" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEAwarenessHour</a> <a href="https://disabled.social/tags/DisabilityRights" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#DisabilityRights</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a> <a href="https://disabled.social/tags/pwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwLC</a> <a href="https://disabled.social/tags/MutualAid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MutualAid</a> <a href="https://disabled.social/tags/LongCovidAid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovidAid</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/melbourne" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@melbourne</a> <a href="https://a.gup.pe/u/disabilityjustice" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@disabilityjustice</a> <a href="https://a.gup.pe/u/australia" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@australia</a> <a href="https://a.gup.pe/u/mutualaid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mutualaid</a> <a href="https://a.gup.pe/u/disability" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@disability</a>

AnnaI really need a home 🏡 Can someone please help me? I’m being <a href="https://disabled.social/tags/neglected" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#neglected</a> & <a href="https://disabled.social/tags/abused" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#abused</a> All you need is a spare room & a heart. Ask anyone you know.Domestic violence orgs don’t help <a href="https://disabled.social/tags/disabled" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#disabled</a> people. I need someone to take me in. I just need a quiet room.I need to be safe with care. Please help.<a href="https://disabled.social/tags/MEAwarenessHour" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEAwarenessHour</a> <a href="https://disabled.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://disabled.social/tags/pWME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pWME</a> <a href="https://disabled.social/tags/PWLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PWLC</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicIllness</a><a href="https://disabled.social/tags/Melbourne" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Melbourne</a> <a href="https://disabled.social/tags/Australia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Australia</a><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/disabilityjustice" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@disabilityjustice</a> <a href="https://a.gup.pe/u/disability" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@disability</a> <a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicillness</a> <a href="https://a.gup.pe/u/neisvoid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@neisvoid</a> <a href="https://a.gup.pe/u/socialwork" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@socialwork</a> <a href="https://a.gup.pe/u/multipledisabilities" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@multipledisabilities</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a>

AnnaI really need somewhere to live. Can someone please help me? I’m being <a href="https://disabled.social/tags/neglected" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#neglected</a> and <a href="https://disabled.social/tags/abused" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#abused</a> All you need is a spare room and a heart. Ask anyone you know.Domestic violence orgs don’t help <a href="https://disabled.social/tags/disabled" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#disabled</a> people. I need someone to take me in. I just need a quiet room.Anyone. I need to be safe with care. <a href="https://disabled.social/tags/MEAwarenessHour" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEAwarenessHour</a> Please help. <a href="https://disabled.social/tags/Melbourne" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Melbourne</a> <a href="https://disabled.social/tags/Australia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Australia</a><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/disabilityjustice" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@disabilityjustice</a> <a href="https://a.gup.pe/u/disability" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@disability</a> <a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicillness</a> <a href="https://a.gup.pe/u/neisvoid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@neisvoid</a> <a href="https://a.gup.pe/u/socialwork" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@socialwork</a> <a href="https://a.gup.pe/u/socialworkers" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@socialworkers</a> <a href="https://a.gup.pe/u/multipledisabilities" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@multipledisabilities</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a>

AnnaStill desperate for a disability advocate. There are none available in my catchment. I‘ve followed every lead I had the energy to.What else can I do? 😔<a href="https://disabled.social/tags/MeAwarenessHour" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MeAwarenessHour</a> <a href="https://a.gup.pe/u/disabilityjustice" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@disabilityjustice@a.gup.pe</a> <a href="https://chirp.social/@DisabilityJustice" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@DisabilityJustice@chirp.social</a> <a href="https://a.gup.pe/u/disability" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@disability</a> <a href="https://a.gup.pe/u/socialwork" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@socialwork</a> <a href="https://a.gup.pe/u/socialworkers" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@socialworkers</a> <a href="https://a.gup.pe/u/socialworker" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@socialworker</a> <a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicillness</a> <a href="https://a.gup.pe/u/neisvoid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@neisvoid</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a>

Anna<a href="https://disabled.social/tags/Boost" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Boost</a> please GPs in clinics waiting for me to:1. Go into aged care (I’m not aged.) 2. To see a <a href="https://disabled.social/tags/GP" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#GP</a> (Who works in their clinic.) 3. Because I don’t fit their business model. (They won’t home visit or <a href="https://disabled.social/tags/Telehealth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Telehealth</a> me even if I see them once.)Someone help me! 😭<a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/chronicpain" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicpain</a> <a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicillness</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a> <a href="https://disabled.social/tags/MEAwarenesshour" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEAwarenesshour</a> <a href="https://disabled.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://disabled.social/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicPain</a> <a href="https://disabled.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicIllness</a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwLC</a> <a href="https://disabled.social/tags/healthcare" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#healthcare</a> <a href="https://disabled.social/tags/medmastodon" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#medmastodon</a> <a href="https://disabled.social/tags/Australia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Australia</a>

Domando Al LoboCon todo olvidé que es miércoles de <a href="https://mastodon.social/tags/MEawarenessHour" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEawarenessHour</a>. La situación de los <a href="https://mastodon.social/tags/pacientes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pacientes</a> con <a href="https://mastodon.social/tags/EncefalomielitisMialgica" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EncefalomielitisMialgica</a> en <a href="https://mastodon.social/tags/Espa%C3%B1a" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#España</a> en un artículo muy completo de @20m en colaboración con la Asociación de Personas con Encefalomielitis Miálgica (@/asociacionPEM) con motivo del <a href="https://mastodon.social/tags/DiaEncefalomielitisMi%C3%A1lgicaSevera" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#DiaEncefalomielitisMiálgicaSevera</a> <a href="https://mastodon.social/tags/EMsevera" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EMsevera</a> <a href="https://mastodon.social/tags/SevereME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SevereME</a> <a href="https://mastodon.social/tags/SevereMEDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SevereMEDay</a> <a href="https://mastodon.social/tags/SevereMEweek" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SevereMEweek</a> <a href="https://mastodon.social/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a> <a href="https://mastodon.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://www.20minutos.es/noticia/5162116/0/lucha-pacientes-con-encefalomielitis-mialgica-para-conseguir-incapacidad-muchas-veces-tienen-que-ir-juicio/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.20minutos.es/noticia/5162116/0/lucha-pacientes-con-encefalomielitis-mialgica-para-conseguir-incapacidad-muchas-veces-tienen-que-ir-juicio/</a>

Domando Al LoboFor the first time, <a href="https://mastodon.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a> have our own infhografic thanks to the collaboration between Spanish Patients Association <a href="https://mastodon.social/tags/PEM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PEM</a> @/AsociacionPEM and <a href="https://mastodon.social/tags/phisicians" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#phisicians</a> of <a href="https://mastodon.social/tags/Spanish" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spanish</a> <a href="https://mastodon.social/tags/PrimaryCare" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PrimaryCare</a> Sociaty @/SEMG_ES (feel free to tell me wrong concepts). NO graded exercise therapy (<a href="https://mastodon.social/tags/GET" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#GET</a>) nor cognitive-behavioral therapy (<a href="https://mastodon.social/tags/CBT" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CBT</a>). <a href="https://mastodon.social/tags/MEawarenessHour" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEawarenessHour</a> <a href="https://mastodon.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://mastodon.social/tags/Inphografic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Inphografic</a> <a href="https://mastodon.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://mastodon.social/tags/disabled" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#disabled</a> <a href="https://mastodon.social/tags/dependence" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#dependence</a> <a href="https://mastodon.social/tags/health" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#health</a> <a href="https://mastodon.social/tags/exarcise" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#exarcise</a> <a href="https://mastodon.social/tags/psychology" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#psychology</a> <a href="https://mastodon.social/tags/AltText4ME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#AltText4ME</a>

Domando Al Lobo<a href="https://mastodon.social/tags/Infograf%C3%ADa" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Infografía</a> sobre <a href="https://mastodon.social/tags/EncefalomielitisMialgica" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EncefalomielitisMialgica</a> gracias a la colaboración entre la Asociación de Personas con Encefalomielitis Miálgica (<a href="https://mastodon.social/tags/PEM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PEM</a>) @/AsociacionPEM y la Sociedad Española de Médicos Generales y de Familia @SEMG_ES. Podéis imprimirla y llevarla con vuestros informes con lo que es y lo que NO se debe hacer SUBRAYADO. Dejarla en centros de <a href="https://mastodon.social/tags/salud" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#salud</a>, etc... Enhorabuena compañeras 💙 <a href="https://mastodon.social/tags/MEAwarenessHour" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEAwarenessHour</a> <a href="https://mastodon.social/tags/AP" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#AP</a> <a href="https://mastodon.social/tags/AtencionPrimaria" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#AtencionPrimaria</a> <a href="https://mastodon.social/tags/EMsfc" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EMsfc</a> <a href="https://mastodon.social/tags/discapacidad" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#discapacidad</a> <a href="https://mastodon.social/tags/dependencia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#dependencia</a> <a href="https://mastodon.social/tags/autoinmunes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autoinmunes</a> <a href="https://mastodon.social/tags/psicologia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#psicologia</a> <a href="https://mastodon.social/tags/TCC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#TCC</a> <a href="https://mastodon.social/tags/ejercicio" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ejercicio</a>

Domando Al Lobo<a href="https://mastodon.social/tags/MEawarenessHour" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEawarenessHour</a> World ME Alliance announced the 'World <a href="https://mastodon.social/tags/ME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ME</a> Day 2023' theme: 'ME: The disease where pushing harder can make you sicker'. Focusing on post-exertional malaise (<a href="https://mastodon.social/tags/PEM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PEM</a>). More INFO: <a href="https://worldmealliance.org/2023/02/2023-world-me-day-campaign-announced/" rel="nofollow noopener noreferrer" target="_blank">https://worldmealliance.org/2023/02/2023-world-me-day-campaign-announced/</a> #<a href="https://mastodon.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://mastodon.social/tags/Maythe12th" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Maythe12th</a> <a href="https://mastodon.social/tags/WorldMEDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#WorldMEDay</a> <a href="https://mastodon.social/tags/LearnFromME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LearnFromME</a> <a href="https://mastodon.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a>

Marina WeisbandWeil gerade <a href="https://chaos.social/tags/MEawarenesshour" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEawarenesshour</a> ist, kann ich ja mal teilen, dass mir gerade mein ganzer Körper schmerzt, ich meinen Kopf nicht heben kann und Denken stundenweise geht. Ich will kein Mitleid. Ich will aufgeklärte Ärzte und Versorungsämter, die mich nicht ratlos anstarren.

Marina WeisbandIn Kooperation mit @FatigatioeV erstelle ich eine Videoreihe rund um <a href="https://chaos.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a>. Im ersten Video: die Grundlagen. Für euch, Ärztinnen, Freunde, Versorungsämter... <a href="https://youtu.be/MJbN5ys3JQk" rel="nofollow noopener noreferrer" target="_blank">https://youtu.be/MJbN5ys3JQk</a> <a href="https://chaos.social/tags/meawarenesshour" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#meawarenesshour</a>

FledertierHas the <a href="https://mastodon.lol/tags/MEAwarenessHour" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEAwarenessHour</a> arrived here already? Seen many of us during the last days, but unsure whether the Fediverse structure is a good place for something like the Awareness Hour (?). <a href="https://mastodon.lol/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a>

haven4booksStashing to read later, but sharing for those interested in this topic. <a href="https://weirder.earth/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NEISvoid</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://weirder.earth/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a>**** RT: @healthhubris@twitter.com New open-access piece looking at the political backdrop to the biopsychosocial model, in the realm of <a href="https://weirder.earth/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> & so-called ‘medically unexplained symptoms’, with implications for <a href="https://weirder.earth/tags/longCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#longCovid</a>. <a href="https://weirder.earth/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#disability</a> <a href="https://weirder.earth/tags/benefits" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#benefits</a> <a href="https://weirder.earth/tags/politics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#politics</a> <a href="https://weirder.earth/tags/MEAwarenessHour" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEAwarenessHour</a><a href="https://citizen-network.org/library/biopsychosocial-model.html" rel="nofollow noopener noreferrer" target="_blank">https://citizen-network.org/library/biopsychosocial-model.html</a>

Segebodo"Wenn dein Kind neben dir sitzt, dich anschaut und sagt: Mama, ich vermisse es mit dir durch zu Stadt zu fahren, einfach nur so, weil uns danach ist, mit Musik - wie früher ! und dein Herz 💔 bricht und du dir das Weinen verkneifst 😔<a href="https://chaos.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> ist ein Arschloch! <a href="https://chaos.social/tags/MEawarenessHour" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEawarenessHour</a>" - @MEwarriorBerlin@twitter.activitypub.actor <a href="https://twitter.com/MEwarriorBerlin/status/1390019027599253504" rel="nofollow noopener noreferrer" target="_blank">https://twitter.com/MEwarriorBerlin/status/1390019027599253504</a>

Segebodo"We’re not faking being sick, we’re faking being well. <a href="https://chaos.social/tags/MeAwarenessHour" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MeAwarenessHour</a>" - @ReaStrawhill@twitter.activitypub.actor <a href="https://twitter.com/ReaStrawhill/status/1390021302531104774" rel="nofollow noopener noreferrer" target="_blank">https://twitter.com/ReaStrawhill/status/1390021302531104774</a>

SegebodoEine andere Erkrankte schreibt: "Ich habe vergessen, wie es sich anfühlt, überhaupt schlafen zu können und morgens erholt und ohne schreckliche Schmerzen aufzuwachen. Ich habe vergessen, wie es sich anfühlt, am Leben teilhaben zu können und nicht mehr nur jeden Tag zu überleben. <a href="https://chaos.social/tags/MEawarenesshour" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEawarenesshour</a>" - @powersavingmod1@twitter.activitypub.actor <a href="https://twitter.com/powersavingmod1/status/1390019736210190342" rel="nofollow noopener noreferrer" target="_blank">https://twitter.com/powersavingmod1/status/1390019736210190342</a>

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