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#systemicexertionintolerancedisease

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Tom Kindlon<p>2/<br>Maeve Boothby-O'Neill died aged 27 at home in Exeter in October 2021. A recent legal hearing into Maeve's death heard there was a gap in NHS services for severely ill ME patients."</p><p>3-minute TV clip:<br><a href="https://youtu.be/pkyU41BHgnM?si=z9-2HJAx710bqfRq" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">youtu.be/pkyU41BHgnM?si=z9-2HJ</span><span class="invisible">Ax710bqfRq</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicE</span></a> <a href="https://disabled.social/tags/MyE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyE</span></a> <a href="https://disabled.social/tags/ME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ME</span></a> <a href="https://disabled.social/tags/millionsmissing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>millionsmissing</span></a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFSME</span></a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFIDS</span></a><br><a href="https://disabled.social/tags/SEID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SEID</span></a> <a href="https://disabled.social/tags/NeuroME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NeuroME</span></a> <a href="https://disabled.social/tags/EndMECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EndMECFS</span></a> <a href="https://disabled.social/tags/SystemicExertionIntoleranceDisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SystemicExertionIntoleranceDisease</span></a><br><a href="https://disabled.social/tags/MEawareness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEawareness</span></a> <a href="https://disabled.social/tags/livingwithME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>livingwithME</span></a> <a href="https://disabled.social/tags/CanYouSeeMENow" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CanYouSeeMENow</span></a></p>
Tom Kindlon<p>2/</p><p>“Living with chronic fatigue syndrome (CFS) is like being erased. It rubs out what my brain and body can do, turning me into a reduced version of myself.”</p><p>“Having CFS is like being a dormant seed, waiting for just enough energy to come alive.”</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicE</span></a> <a href="https://disabled.social/tags/MyE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyE</span></a> <a href="https://disabled.social/tags/ME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ME</span></a> <a href="https://disabled.social/tags/millionsmissing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>millionsmissing</span></a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFSME</span></a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFIDS</span></a><br><a href="https://disabled.social/tags/SEID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SEID</span></a> <a href="https://disabled.social/tags/NeuroME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NeuroME</span></a> <a href="https://disabled.social/tags/EndMECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EndMECFS</span></a> <a href="https://disabled.social/tags/SystemicExertionIntoleranceDisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SystemicExertionIntoleranceDisease</span></a><br><a href="https://disabled.social/tags/MEawareness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEawareness</span></a> <a href="https://disabled.social/tags/livingwithME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>livingwithME</span></a> <a href="https://disabled.social/tags/CanYouSeeMENow" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CanYouSeeMENow</span></a></p>
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