Helvede

27 posts24 participants0 posts today

Church of JeffOne of the things that I used to do is run board game parties for <a href="https://mastodon.world/tags/autistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autistic</a> people to socialize. Many of my friends are social workers and are companions to <a href="https://mastodon.world/tags/neurodivergent" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#neurodivergent</a> individuals.I have a rather good sized game collection with lots of rare games but that also means it is a dated collection.If you're into <a href="https://mastodon.world/tags/boardgames" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#boardgames</a> please suggest some of your favorites.If you're inclined to help, here are some games I've been looking at to bolster my collection. <a href="https://www.amazon.com/registries/gl/guest-view/3HQFQSAU54M17" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.amazon.com/registries/gl/guest-view/3HQFQSAU54M17</a>

Niamh GarveyI was in Hodges Figgis (which is the bookshop Waterstones in <a href="https://mastodon.ie/tags/Dublin" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Dublin</a>) looking for my book of essays by <a href="https://mastodon.ie/tags/Irish" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Irish</a> <a href="https://mastodon.ie/tags/Autistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Autistic</a> adults. I couldn't find it in new non fiction. But where did I find it? There, on the bestseller stand, proudly standly at number 2. I NEVER expected a book of autistic voices to be so popular in the mainstream. Makes me hopeful. Times are changing ❤ <a href="https://a.gup.pe/u/actuallyautistic" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@actuallyautistic</a>

GoatsLiveOur <a href="https://mastodon.social/tags/autistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autistic</a> adult son drives his tractor past Violet who is eating some hay she carried from the hay bucket. 私たちの <a href="https://mastodon.social/tags/%E8%87%AA%E9%96%89%E7%97%87" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#自閉症</a> の成人の息子が、干し草のバケツから運んできた干し草を食べているバイオレットの横をトラクターで通り過ぎます。 <a href="https://mastodon.social/tags/%E3%83%A4%E3%82%AE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ヤギ</a> <a href="https://mastodon.social/tags/goats" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#goats</a> <a href="https://mastodon.social/tags/GoatsOfMastodon" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#GoatsOfMastodon</a>

Niamh GarveyLooking forward to having an energy refueling day today i.e a crash day. Bit of nature, reading books, bit of favourite telly, freedom to stim, sensory loveliness (weighted blanket, smelling soap, nature's natural sensory calmers etc.). The sheer bliss of being unproductive to the rest of the world but very productice at minding my <a href="https://mastodon.ie/tags/Autistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Autistic</a> self.<a href="https://a.gup.pe/u/actuallyautistic" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@actuallyautistic</a>

Niamh GarveyI was interviewed on TV today about being diagnosed as <a href="https://mastodon.ie/tags/Autistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Autistic</a> aged 34, and compiling a book of essays by autistic people. In case it's of interest to anyone, here's the interview:<a href="https://a.gup.pe/u/actuallyautistic" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@actuallyautistic</a> <a href="https://youtu.be/KCHeGOL7v4I?feature=shared" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://youtu.be/KCHeGOL7v4I?feature=shared</a>

nellie-m<a href="https://techhub.social/@hosford42" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@hosford42</a> <a href="https://beige.party/@pathfinder" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@pathfinder</a> <a href="https://mas.to/@darrellpf" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@darrellpf</a> <a href="https://a.gup.pe/u/actuallyautistic" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@actuallyautistic</a> reading the original post, I first thought: I totally know this. As a teen, I was afraid other people on the bus might judge me for the way I was *breathing*.And my next thought was: this is how <a href="https://autisticpri.de/tags/autistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autistic</a> people react to an environment that constantly punishes them for being who they are. The looks. The corrections. The fault-finding. The pressure to become invisible.This is Dimming. Camouflaging. Chronic PTSD.

Niamh GarveyHas anyone a solution for wearing noise cancelling headphones and sunglasses at same time? Currently finding the headphones are making the sunglasses dig into my head painfully. But the glare of sun is hurting, and the noise of train travel is triggering me too. <a href="https://mastodon.ie/tags/Autistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Autistic</a> <a href="https://mastodon.ie/tags/SensoryProcessing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SensoryProcessing</a> <a href="https://mastodon.ie/tags/SPD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SPD</a><a href="https://a.gup.pe/u/actuallyautistic" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@actuallyautistic</a>

ideogramHaving some time off I realise just how much sleep I really need. It turns out it's about 10-12 hours a day. <a href="https://social.coop/tags/Autism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Autism</a> <a href="https://social.coop/tags/autistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autistic</a> <a href="https://social.coop/tags/neurodiverse" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#neurodiverse</a> <a href="https://a.gup.pe/u/actuallyautistic" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@actuallyautistic</a> <a href="https://social.coop/tags/AutisticBurnout" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#AutisticBurnout</a> <a href="https://social.coop/tags/ActuallyAutistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ActuallyAutistic</a>

David Gray-HammondWe will be presenting a free webinar on April 24th at 7.30pm UK time to explore the findings of our new paper on improving Substance Use services for Autistic adults. The papers authors will hold a live discussion of the findings and answer some questions from the audience. To register, go here-<a href="https://www.eventbrite.co.uk/e/improving-substance-use-treatment-for-autistic-adults-tickets-1315555173939" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.eventbrite.co.uk/e/improving-substance-use-treatment-for-autistic-adults-tickets-1315555173939</a><a href="https://disabled.social/tags/ActuallyAutistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ActuallyAutistic</a> <a href="https://disabled.social/tags/autism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autism</a> <a href="https://disabled.social/tags/Autistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Autistic</a> <a href="https://disabled.social/tags/AutismResearch" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#AutismResearch</a> <a href="https://disabled.social/tags/SubstanceUse" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SubstanceUse</a> <a href="https://disabled.social/tags/Addiction" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Addiction</a> <a href="https://disabled.social/tags/MentalHealth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MentalHealth</a> <a href="https://newsmast.community/@mentalhealth" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mentalhealth@newsmast.community</a> <a href="https://a.gup.pe/u/mentalhealth" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mentalhealth@a.gup.pe</a> <a href="https://a.gup.pe/u/neurodiversity" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@neurodiversity</a> <a href="https://a.gup.pe/u/actuallyautistic" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@actuallyautistic</a> <a href="https://a.gup.pe/u/autisticadvocacy" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@autisticadvocacy</a>

KFears<a href="https://mas.to/@KatyElphinstone" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@KatyElphinstone</a> There is a very large gap in understanding "your best" between people.People with ADHD frequently believe that they perform at their best in hyperfocus state, and perform badly otherwise. Bipolar people often have a similar experience. People with autism often like doing things properly - which leads them to spend a lot of time on research and usually overlooked steps. People with trauma often have experiences where their "best" was not enough to matter."Do your best" means something along the lines of "do it as usual, maybe bump its priority". But this meaning hinges on the assumption that your "best" is close to your "usual" - that your productivity isn't massively impacted by some factors.So really, this phrase is very inconsiderate. I consider it an artifact of ableist, neurotypical-focused era, and I don't use it. Better say "good luck", or "appreciate your effort".<a href="https://mstdn.games/tags/Autistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Autistic</a> <a href="https://mstdn.games/tags/ADHD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ADHD</a> <a href="https://mstdn.games/tags/MentalHealth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MentalHealth</a>

Constantijn ☮is there any treatment from severe autistic burnout? like antidepressants and whatnot?<a href="https://a.gup.pe/u/actuallyautistic" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@actuallyautistic</a> <a href="https://mastodon.social/tags/actuallyautistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#actuallyautistic</a> <a href="https://mastodon.social/tags/autistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autistic</a> <a href="https://mastodon.social/tags/burnout" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#burnout</a> <a href="https://mastodon.social/tags/neurodivergent" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#neurodivergent</a> <a href="https://mastodon.social/tags/mentalhealth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mentalhealth</a>

David Gray-Hammond"Autism Awareness or Autism Acceptance?"Wed, 16 Apr, 18:00<a href="https://www.eventbrite.co.uk/e/autism-awareness-or-autism-acceptance-tickets-1219619257029" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.eventbrite.co.uk/e/autism-awareness-or-autism-acceptance-tickets-1219619257029</a>Ticketholders will recieve a recording and a resource/workbook<a href="https://disabled.social/tags/ActuallyAutistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ActuallyAutistic</a> <a href="https://disabled.social/tags/autism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autism</a> <a href="https://disabled.social/tags/Autistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Autistic</a> <a href="https://disabled.social/tags/AutisticAcceptanceMonth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#AutisticAcceptanceMonth</a> <a href="https://disabled.social/tags/AutismAwareness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#AutismAwareness</a>

key jordan-abramslong. ranting. if you think this is about you and not just a critique it probably is.just a reminder that not everyone you see not wearing a mask is an asshole. yes, <a href="https://kolektiva.social/tags/WearAMask" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#WearAMask</a> because <a href="https://kolektiva.social/tags/CovidIsNotOver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CovidIsNotOver</a> is great and the by and large incentive for everyone. but not all <a href="https://kolektiva.social/tags/ActuallyAutistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ActuallyAutistic</a> <a href="https://kolektiva.social/tags/Autistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Autistic</a> people can do enough densensitisation and exposure therapy and graduated trials to be able to get to the point of wearing a mask. other diagnoses too, certain individuals with PTSD (which I also have). there are, what I am saying, legitimate reasons to not be able to wear a mask.I was able to adjust to a gaiter during the beginning of the pandemic, when anything was better than nothing. it didn't put pressure on my nose and it wasn't tight over my face. alas, those aren't actually sufcicient.I can tolerate a paper surgical mask for about 10 to 15 minutes before I'm incredibly distressed, overwhelmed, and going into either meltdown or shutdown depending upon the day. I can wear a KN95 mask for about five minutes and it still requires me to be medicated with Xanax in order to tolerate the sensation on my face and the trauma memories from last… everything overwhelms me and I end up dissociated. my best I've done with a KN95 is about half an hour or so. with Xanax.I've tried so hard to mask.and while I'm in recovery and remission from polysubstance use disorder, Xanax is not the solution. it's a good tool and I'm glad I have it available, and I'm not making up excuses to use it with this, making just really is that much hell for me.so take your judgment and shove it back down your throat, or up your ass, or get the fuck away from me because your solutions leave me and mine and people in my situation as acceptable casualties, when in fact wear a mask is meant to protect people like me if enough of the sheeple would actually do it. in order to have success in your exhortations you need to be a little bit more careful about what your messaging actually is, and who you're targeting, and who is going to actually see it and be impacted by it. I still go to the absolute farthest place from people who aren't masking. I don't go anywhere if I'm actively sick but Gxd only knows how many times I've actually had COVID since half of the confirmed tests were because I had something I was going to and wanted to exercise precautions; I got it without it being immediately symptomatic.and I've got long COVID from 3 (or more) asymptomatic infections and one pretty nasty round through it last October. I know the consequences of not masking. but what I don't have is the economic privilege to stay home. my spouse is disabled too. we need food. we need to go to appointments, and due to medical needs and hearing loss. I need to do things at school. I need to do things with the department of rehabilitation. so shove your trite bullshit where the sun don't shine.

Niamh GarveyTomorrow morning, approx 8:45 I will be on TV on Ireland AM talking about being autistic, autism in Ireland, and the book I edited Wired Our Own Way; An Anthology of Autistic Irish Voices, published by New Island Books. Channel Virgin Media 1. Hope I do us Autists proud 💪 <a href="https://a.gup.pe/u/actuallyautistic" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@actuallyautistic</a> <a href="https://mastodon.ie/tags/Autistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Autistic</a> <a href="https://mastodon.ie/tags/Autism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Autism</a>

ideogramI repotted two plants today, which if you understand autistic burnout you'll know how many spoons that takes. The monstera is new but came in a too small pot.<a href="https://social.coop/tags/Autism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Autism</a> <a href="https://social.coop/tags/autistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autistic</a> <a href="https://social.coop/tags/neurodiverse" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#neurodiverse</a> <a href="https://a.gup.pe/u/actuallyautistic" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@actuallyautistic</a> <a href="https://social.coop/tags/AutisticBurnout" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#AutisticBurnout</a> <a href="https://social.coop/tags/ActuallyAutistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ActuallyAutistic</a>

David Gray-HammondI am now offering some contant on substack, some free stuff and some for paying subscribers. Paid subscribers get full access to my new podcast with free previews available. If this interests you, you can check it out here, I also have a few exclusive articles.<a href="https://www.davidgrayhammond.co.uk/p/autistic-storytime-with-david-episode" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.davidgrayhammond.co.uk/p/autistic-storytime-with-david-episode</a><a href="https://disabled.social/tags/ActuallyAutistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ActuallyAutistic</a> <a href="https://disabled.social/tags/autism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autism</a> <a href="https://disabled.social/tags/Autistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Autistic</a> <a href="https://disabled.social/tags/ADHD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ADHD</a> <a href="https://disabled.social/tags/AuDHD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#AuDHD</a> <a href="https://disabled.social/tags/neurodiversity" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#neurodiversity</a> <a href="https://disabled.social/tags/neurodivergent" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#neurodivergent</a>

Niamh GarveyTruly delighted the <a href="https://mastodon.ie/tags/Book" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Book</a> I compiled, 'Wired Our Own Way; An Anthology of <a href="https://mastodon.ie/tags/Autistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Autistic</a> <a href="https://mastodon.ie/tags/Irish" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Irish</a> Voices" has made the <a href="https://mastodon.ie/tags/Bestsellers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Bestsellers</a>. Never had a bestseller before so my mind is a bit blown. It has proven so popular that it's gone into a second print already. Thank you <a href="https://mastodon.ie/tags/Ireland" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Ireland</a> for choosing to read and listen to our voices. Available as <a href="https://mastodon.ie/tags/Paperback" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Paperback</a> and as an <a href="https://mastodon.ie/tags/Audiobook" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Audiobook</a><a href="https://www.newisland.ie/shop/p/wired-our-own-way" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.newisland.ie/shop/p/wired-our-own-way</a><a href="https://a.gup.pe/u/actuallyautistic" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@actuallyautistic</a>

ideogramThis Autism Ted talk is great. Don't be put off by the incorrect assertion that people once thought the earth was flat near the beginning. <a href="https://www.youtube.com/watch?v=A1AUdaH-EPM&t=797" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.youtube.com/watch?v=A1AUdaH-EPM&t=797</a><a href="https://social.coop/tags/Autism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Autism</a> <a href="https://social.coop/tags/autistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autistic</a> <a href="https://social.coop/tags/neurodiverse" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#neurodiverse</a> <a href="https://a.gup.pe/u/actuallyautistic" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@actuallyautistic</a> <a href="https://social.coop/tags/AutisticBurnout" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#AutisticBurnout</a> <a href="https://social.coop/tags/ActuallyAutistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ActuallyAutistic</a>

Katy ElphinstoneI wish somebody had told me this sooner. <a href="https://mas.to/tags/Autistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Autistic</a> <a href="https://mas.to/tags/Neurodivergent" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Neurodivergent</a>

PetrichordApril is Autism Awareness/Acceptance month.Here are a few friendly reminders:Autism Speaks is a hate group.They have never been able to maintain having an autistic individual on their board for longer than a few months.They refer to autistic children as a burden. Constantly.They do not provide even the slightest amount of support to autistic young adults and adultsThey're more focused on "fixing" the child in order to relieve the burden on the parents.They rescinded a woman's job offer after she requested childcare assistance for her autistic son.They released a documentary where one of their founders discussed contemplating a murder/suicide of her autistic daughter. IN FRONT of her autistic daughter.They released a fearmongering documentary called "I am autism" (produced by ALFONSO FUCKING CUARON) that included such content as “I am autism…I know where you live…I work faster than pediatric AIDS, cancer, and diabetes combined…I will make sure your marriage fails.”They want you to "light it up blue" because "Autism spectrum disorders are almost 5 times more common among boys than among girls. So the color blue represents the boys diagnosed with autism." A screenshot of the statement taken directly from the Autism Speaks website is attached if you don't believe me. This promotes the erasure of autistic women, even though there's plenty of evidence to suggest that there's actually an even split, but that autism just manifests significantly different in girls and it's much more difficult to identify due to that.In other words, fuck your blue lights.Also vaccinate your fucking kids.<a href="https://beige.party/tags/autism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autism</a> <a href="https://beige.party/tags/autistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autistic</a> <a href="https://beige.party/tags/ActuallyAutistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ActuallyAutistic</a>

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