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#bibliophile

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When I was a little kid - I knew I was “different”. I didn’t know WHY - but I didn’t want to play with other kids. I begged my parents not to make me do sports, gym or extra-curricular activities. I spent weekends sleeping instead of going to parties or watching Saturday morning cartoons.

Kids who develop chronic illness or disability early in life won’t necessarily KNOW they’re sick. They’re just learning how to express themselves - and if the symptoms started young they can’t possibly know it’s not “normal.” All too often they’re pushed to do things that are harmful to them - because adults assume they’re faking or attention seeking.

In my case it turned out I had vEDS - the most severe form of Ehlers Danlos syndrome. Which is why I was in pain all the time. Why I was constantly injured, sick and exhausted.

I didn’t even realize I was sick until university - living with other kids my age was a shocking wake up call. Seeing what they could do versus what I could do made abundantly obvious that my “different” was actually some sort of serious health challenge.

It took almost two more decades to finally get diagnosed.

I wrote about my struggles to realize I was disabled in a personal essay about libraries. It might sound strange - but my local public library became my safe haven. It’s where I went to rest, recharge and avoid bullying and judgement. Books never let me down and they helped me explore life in a safe and accessible manner.

What a gift that was: disabledginger.com/p/libraries

Today is Ira Levin's birthday.
These were some of the first adult horror books I ever read besides Stephen King, because my mother had this set of hardcovers. She let me have it when I moved out. They're so different from the books she read(s)- I don't think she ever even read these- but I'm glad the universe sought fit to bring them into my life.

(I got the paperback of STEPFORD WIVES a couple years ago because I adore the cover.)

#books #bibliophile #IraLevin #horror @horrorbooks