I'm absolutely exhausted today, like literally having trouble keeping my eyes open, and I couldn't work out why.. until I remembered that I had therapy yesterday and literally didn't stop talking for the entire hour.
New ME Research UK-funded study:
HERV activation segregates ME/CFS from #fibromyalgia while defining a novel nosologic entity
https://www.biorxiv.org/content/10.1101/2023.10.05.561025v2
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
@mecfs @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM
(US) Urgent Call to Action: Medicare Telehealth Benefit
From Massachusetts ME/CFS & FM Assoc
https://massmecfs.org/newsletters/912-2024-12-december-newsletter
Links in image
https://www.congress.gov/bill/118th-congress/house-bill/7623/all-actions
https://actionnetwork.org/letters/preserving-telehealth-3/
https://actionnetwork.org/users/sign_in
#chronicillness #ChronicPain #Spoonies
#ChronicallyIll #LongCovid #MEcfs @chronicillness
@spoonies
@disability
@disabilityjustice
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome @longcovid @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM #POTS @pots #OI
I’m feeling terrible! #Fibromyalgia #depression This is why I hate winter! Not even chocolate makes me feel better.
Source: @throughlupus (maybe twitter, don't know)
#chronicillness #autoimmune #chronicallyill #chronicillnesshumor #chronicillnessmemes #autoimmunememes #fibromemes #fibromyalgia #spoonie
Showering when you have chronic illness, a few thoughts.
It takes a stupid amount of energy just to get in the shower.
Water can hurt the skin.
Having the water set at "only just warm" because the dizziness is real and heat will make it worse.
Staying upright is hard work.
Shaving the legs - just not happening, its winter warmth.
Spending 5 minutes trying to scrub off a random bruise.
Injuring yourself even though you have stayed upright the whole time.
Getting out the shower, wrapping yourself in towels and realising that your energy has gone, so you will now stay wrapped in towels until you either find some energy or get too damn cold that getting dressed is essential.
I miss the days when showers were easy.
Who decided that pop bottles have to have their lids attached?
It’s much harder to deal with the lids
when they are attached than when their not.
For me the when trying to screw and unscrew I have more pain in my fingers when attached and I don’t always have a knife to cut the lid off
And I have more issues trying to negotiate the lid back into place to close off the bottle
And trying to use a grip helper to get the lid off or back on is more complicated
Today, I found the negative side of masking.
I have an interesting intersection of fibromyalgia, ME/CFS, spine issues, and being autistic. A few days ago, I was trying to make my husband happy, and worked in the backyard to cut back some plants. I knew it would be painful to my back and in general, and would have a ME/CFS crash the next day, but pushed through nonetheless.
Today my husband said I wasn’t in pain. But I *was*, I was just masking because I was trying to present normal, if but for a moment. Unfortunately, now he thinks my chief issue is of a mental nature, which is completely not the case.
Anyone relate?
@actuallyautistic #ActuallyAutistic #Fibromyalgia #ChronicPain #AutisticMasking
Comic by PsychoSuzanne. I changed the words and a bit of the art for chronic illness