Recent searches
Search options
#healthdata
Protect 'valuable' Canadian #healthdata from Trump's AI aspirations, experts urge https://www.ctvnews.ca/health/article/protect-valuable-canadian-health-data-from-trumps-ai-aspirations-experts-urge/ “Medical researchers and lawyers say our rocky relationship with the U.S. creates an urgent need to protect a critical Canadian resource: patient health information that can be used to train artificial intelligence.
“Our health data is the most valuable health data set in the world,” said Natalie Raffoul, an intellectual property lawyer in Ottawa. (1/3)
Faster diagnoses. Personalized care. Life-saving research. AI promises all of this—but only if we unlock the data. The fix? Open interoperability.
To learn more, read the full report: https://hubs.ly/Q038gfVy0
This actually showed up 3 days ago I just forgot to post it. Flu and Covid levels are going up, so mask up!
#Covid19 #Infuenza #HealthData
https://substackcdn.com/image/fetch/f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F453a12c2-e458-417a-b21e-95aea43b95d7_1600x1600.png?utm_source=substack&utm_medium=email
I just wanted to write a post about the most shocking major data leak fuckups revealed by awesome people at #38C3 but I can't because they just keep on adding new horrifying things 
These methods can easily be abused to disclose people’s sexuality, harass them at home & work, discriminate against them based on their religious beliefs, surveil them when they attend protests and persecute them for accessing health care. #HealthData #privacy
None of my business, of course. But I stumbled on this today while searching F-Droid for something else. So I'm sharing it in a spirit of solidarity, mutual aid, and health privacy.
Anyone looking for a respectful menstrual cycle tracking app that doesn't track you? One where you - or someone you trust - can check that it keeps all data on your device (source code published under GPLv3.0)?
You could do worse than #Drip;
For 10 years, MEPs of the German @piratenpartei have represented you in the EU Parliament.
Read about my greatest successes here: https://patrick-breyer.de/en/pirateswork-in-europe-our-track-record/
Five more years of von der Leyen? Just look at what her EU Commission proposed in the past five years:
the end of private messaging and secure encryption #ChatControlmandating unique citizen identifiers #eIDworking group to resurrect indiscriminate #DataRetention #EUGoingDarkessentially unchanged online tracking & micro-targeting practices #politicalAdslegalising #Europol's unlawful bulk data collection practicesultra-fast cross-border online content removals without court orders #TERREG#biometricMassSurveillance in the #AIActgranting industry access to our #healthdata without our consent #EHDS
Ursula von der Leyen has been continuously eroding our fundamental rights. In the past five years, her EU Commission proposed:
the end of private messaging and secure encryption #ChatControlintroducing unique citizen identifiers #eIDa working group to resurrect indiscriminate #DataRetention #EUGoingDarkessentially unchanged online tracking & micro-targeting practices #DSA #politicalAdslegalising #Europol's unlawful bulk data collection practicesultra-fast cross-border online content removals without court orders #TERREGallowing for #biometricMassSurveillance in the #AIActgranting industry access to our #healthdata without our consent #EHDS
Von der Leyen’s Europe needs digital freedom fighters! #Pirates
"The NDMS [National Disease Management System] was being hosted within a 'private isolated section' of Amazon's 'cloud' of data warehouse servers in Sydney."
#PhilPennington, 2024
Another is our enduring focus on reproductive #privacy + #HealthData – find out more from our thread in response to last night’s #SOTU2024 address, which centered the importance of this issue: https://cdt.org/collections/reproductive-rights/
Looking forward to a deep-dive discussion at #PrivacyCamp24 comparing #healthdata regimes in the #EU and #UK and how (and if at all) they protect #patients' rights.
We're kicking off #PrivacyCamp24 now, watch HERE: https://privacycamp.eu/
Are you ready to 
️ reveal, rethink and change the systems ️ ?
digital systems of exclusion #HealthData & patients' rights #Privacy is big business extractivist #tech solutions for the #ClimateCrisis
Share your thoughts with us in this thread!
3/15 At the same time, @bisilisib will lead a conversation on #HealthData 
with Elisa Leila Elhadj from KU Leuven, Nicola Hamilton from Understanding Patient Data, Benoit Marchal from Opens profile photo
PicAps Association & Francesco Vogelezang from @greensefa @europarl_en
Read more about the session: https://privacycamp.eu/health-data-from-eus-ehds-to-englands-nhs-national-data-opt-out/
European Health Data Space #EHDS: Colleagues and I want to stop the obligation for everyone to have a remotely accessible electronic patient file. Vote next week. Our #healthdata belongs to us!
https://www.patrick-breyer.de/en/european-health-data-space-lawmakers-want-to-stop-the-obligation-for-everyone-to-have-a-remotely-accessible-electronic-patient-file/
"Enter the national data platform - the foundation for a $700m-plus overhaul of data and digital health..."
"The new platform will need to be able to take over, merge and make sense of petabytes of data, multiplying itself daily in 28 disparate, siloed health data warehouses, and processed by a motley, often ancient crew of hospital apps numbering in the thousands."
#PhilPennington, 2023
The recent data breach of 23andMe affects over 7 million people and is a great reminder why you should never reuse passwords for multiple accounts.
The company claims that a small user base were breached after a credential stuffing attack. When asked why breaching a small subset of users can affect over 7 million people, the company stated that in their preliminary investigation, it's likely the attackers were able to scrape additional people's data through their optional DNA Relatives feature that allows participants to find out other users they may be related to.
Also a good reminder regarding how much data these companies have and how they can correlate genetic information where a small breach can affect so many. It's mind boggling how much health information these companies collect.
https://therecord.media/scraping-incident-genetic-testing-site
#infosec #cybersecurity #databreach #credentialstuffing #23andMe #genetic #healthdata #PHI #healthsec
The Commission version prohibited the use of #healthData even with consent, and limited data used in platform work to that 'intrinsically connected and strictly necessary' — that has gone in the Council Version
"This weekend, 17 of the 20 #NHS trusts that were using #Meta Pixel confirmed they had pulled the #tracking tool from their websites."
It's 2023 and:
"Eight issued apologies to patients. Multiple trusts said they (...) were not aware that they were sending #patient data to #Facebook."
CC @echo_pbreyer
#privacy #consent #GDPR #EHDS #BigTech #HealthData
