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#PostCovid

4 posts4 participants0 posts today
Public
Tom Kindlon

Trial by Error by David Tuller

BMJ's Strange Response to Our Letter of Concern Regarding "Living Systematic review" of Long Covid Interventions

virology.ws/2025/03/28/trial-b

About ongoing aftermaths after Tuller with 18 colleagues sent a letter to BMJ requesting a correction to a problematic review of LC treatments.

@longcovid
#LongCovid #PwLC #PostCovidSyndrome #LC #PASC #postcovid
#CovidBrain

virology.ws · Trial By Error: BMJ's Strange Response to Our Letter of Concern Regarding "Living Systematic Review" of Long Covid Interventions | Virology BlogBy David Tuller, DrPH In December, I sent a letter, co-signed by 18 colleagues, to The BMJ's editor in chief, Dr Kamran Abbasi. The letter requested a ...
Public
Barbara Wimmer - shroombab

Ich weiß, dass nahezu alle Menschen da draußen ihr "normales" Leben wieder aufgenommen haben. Dass ihr da draußen lacht, weint, was trinkt, euch verabredet, bastelt, lötet, oder einfach Spaß habt.

Ich fühl mich wirklich gefangen in meiner Wohnung, die ich nur gegen einen schlimmen Preis (... starke Schmerzen & Symptome) verlassen kann und gefangen in meinem Körper. An meinem Leben ist nichts mehr wie früher.

Damit hab ich sehr zu kämpfen.

#PostCovid#MCAS#POTS
Public *
Omega_Scribet

'Steeds meer huisartsen schrijven off-label naltrexon bij postcovidpatienten voor’

"lage dosis naltrexon van maximaal 5 mg per dag, een middel dat off-label al langer gebruikt bij onder meer ME/chronisch vermoeidheidsyndroom (cvs). Achterliggende hypothese is dat deze lage dosering leidt tot pijnvermindering en een anti-inflammatoir effect. "

"Naltrexon in hoge dosering (25mg) is geregistreerd voor alcohol- en opioidenverslaving, doordat het de werking van morfine blokkeert."

"het opbouwschema van naltrexon op haar Instagram account gezet"

"Daarnaast zijn er nog andere (niet-)medicamenteuze stappen die je als huisarts kunt zetten, zoals nagaan of de pacing goed wordt uitgevoerd. En bij posturaal orthostatisch tachycardiesyndroom (POTS) drie liter water per dag en zout adviseren, en eventueel een steunpanty.’"

medischcontact.nl/actueel/laat

www.medischcontact.nl‘Steeds meer huisartsen schrijven offlabel naltrexon bij postcovidpatienten voor’Huisartsen schrijven postcovidpatiënten met postexertionele malaise (PEM) steeds vaker, off-label, een lage dosering naltrexon voor. Dat vertelden Jojanneke Kant en longarts Merel Hellemons (ErasmusMC, onder meer werkzaam bij postcovidkliniek) op het recent gehouden ‘long covid symposium’.
#gezondheid#LongCovid#PostCovid
Public
Tom Kindlon

(Australia-wide survey)
Are you someone who is experiencing, treating or caring for someone with ME/CFS and/or #LongCovid ?

"The Australian e-Health Research Centre at CSIRO ... is conducting a survey to understand the research priorities of the community"

Link:
csiro.qualtrics.com/jfe/form/S

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#PASC #PwLC #postcovid #postcovid19 #LC #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@auscovid19 #auscovid19

1/

Are you living with, caring for, or treating someone with Long COVID or Myalgic Encephalitis/Chronic Fatigue Syndrome (ME/CFS)? We want to hear from you! The Australian E-Health Research Centre (AEHRC) and Monash University have partnered with Emerge Australia to conduct a study seeking to understand the research priorities of people living with, caring for, or treating someone with Long COVID or ME/CFS. We also want to understand the major challenges they currently face in accessing quality care. M= The AEHRC, Monash University and Emerge Australia are currently recruiting participants aged 18 years or older to participate in an online survey which is expected to take around 15 minutes to complete. Participants will also have the option of participating in a further interview, should they choose, expected to take around 30 minutes. The interview can be undertaken over multiple sessions is needed or via email response. Participation is voluntary and you do not have to take part if you don't want to. You can choose to participate in only the survey if you wish. For additional information about the project please click the link below to view the Participant Information Sheet and access the survey. Access the information sheet and survey here Australian e-Health CSIRO Research Centre MONASH University emerge australia Contact Person: Dr Alana Delaforce, Australian E-Health Research Centre, alana.delaforce@csiro.au 296 Herston Road, Herston, Qld, 4029 P: 07 3253 3647
Public
Graviton

Long Covid Bullshit Bingo

When I saw the paper "Language Matters: What Not to Say to Patients with Long COVID, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, and Other Complex Chronic Disorders" doi.org/10.3390/ijerph22020275 I immediately wanted to make a Bullshit Bingo out of it.

Get your own Bingo Card: buzzword-bingo.github.io/#Long

And the advanced version with all the options individually: buzzword-bingo.github.io/#Long

@longcovid

#LongCovid #PostCovid #PASC#MECFS #ME #CFS #ChronicIllnessMemes

A square 4x4 bingo card with the title "Long Covid Bingo". The fields include sentences like: "Many people have it worse", "Good news: Your tests are all normal" and "You need to stop thinking about your symptoms so much"
Public
Tom Kindlon

Sympathetic article; quotes 3 German experts

"Years after the pandemic, has the threat of #LongCovid subsided?"

yahoo.com/news/years-pandemic-

Includes this "Depending on the symptoms, doctors will often recommend exercise therapy ..." but then that can be true for people without PEM

@longcovid
#PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@covid19 #Coronavirus
#COVID19 #COVID #SARSCoV2 @novid@chirp.social #novid @novid@a.gup.pe #CovidIsNotOver

1/

dpa international Years after the pandemic, has the threat of Long Covid subsided? DPA Mon, February 24, 2025 at 3:33 PM GMT5 min read 4 Many Long Covid sufferers first have to learn to accept that even small household tasks burn up a huge amount of energy. Annette Riedl/dpa Many Long Covid sufferers first have to learn to accept that even small household tasks burn up a huge amount of energy. Annette Riedl/dpa After the initial global shock of the pandemic, another followed. Some people, it emerged, were surviving an infection, but not making a full recovery. About four years ago, it started to become clear that Sars-CoV-2, the coronavirus behind the pandemic, could impair mental and physical performance well beyond the initial infection. The phenomenon of symptoms lasting longer than four weeks has long since been given a name - Long Covid. However, medicine is still a long way from curing the causes of such long-term effects.
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