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From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team https://pmc.ncbi.nlm.nih.gov/articles/PMC6468435/pdf/diagnostics-09-00026.pdf
#MyalgicE #MEeps #CFSME #CFIDS #SEID #PwLC
#PostCovidSyndrome #postcovid @mecfs #MEcfs #CFS #PwME @longcovid
#LongCovid
"A suicide note was found in the back of her parents' car".
The Daily Echo, Bournemouth, England. 18th February 2016.
#myalgicencephalomyelitis #cfsme #myalgice #mecfs
@rfh1955
"As Rising Numbers Deemed Unfit For Work"
Did you read this? All of it?
Hmmm. I wonder what has been going on for the past 5 years...
"They also believe that there has been a complete failure to keep in touch with those currently deemed too sick to work and believe that there is mounting evidence that even the simplest conversations with work coaches can have a positive impact."
Work coach? Would that be like "Come on, you can do it. It's not as bad as you think. .. Pull yourself together."
?
#CovidIsNotOver #covid #LongCOVID #me #cfsme #uk
https://www.theguardian.com/politics/2025/feb/08/labour-planning-radical-overhaul-of-benefit-system-as-rising-numbers-deemed-unfit-to-work
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From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team https://pmc.ncbi.nlm.nih.gov/articles/PMC6468435/pdf/diagnostics-09-00026.pdf
#MyalgicE #PwME #MEeps #CFSME #CFIDS #SEID #PwLC
#mecfs #LongCovid
#PostCovidSyndrome #postcovid @mecfs @longcovid
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Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath.
#MyalgicE #MEeps #CFSME #LongCovid #NeuroME @mecfs @longcovid
@kemonine ppl I follow here who share lots of research stuff:
@tomkindlon
@ahimsa_pdx
(And someone else I can't remember...)
Anybody else got good data nerd leads for kemo to follow?
Myalgic Encephalomyelitis
Long Covid
@RFH1955 
The Okmulgee Daily Times, US. 27th August 1989.
Today, 
years ago: “Once @CDCgov releases its findings, definitive help should be on the way”.
Today, 
years ago. The Edmonton Journal, Canada. 27th August 1996.
“Insurance companies say, “It’s all in the mind, so we can’t pay.’”
Un hilo de 30 posts que aportan información, enlaces, infogragias, criterios de diagnóstico y guías de cuidado... con rigor científico para actualizarse en #EncefalomielitisMialgica.
Para profesionales de la #salud y cualquiera que necesite estar al día.
Gracias a @/lauracayuela7 por el esfuerzo hecho dado su estado
https://x.com/LauraCayuela7/status/1786345542164918562?t=fngVjKn8yVGwLUYz_9sTWA&s=19
#MastoMed #FediMed #PsychMastodon #MastoPsy #fisioterapeutas #enfermeras
#ME #cfsME #SevereME #pwME #pacientes #EncefalomielitisMialgicaSevera
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by reposting and/or liking this video. It's a preview of a documentary, formerly called "Blue Ribbon" (now called The Forgotten Plague)
(3 minutes 5 seconds)
Day #6
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS
#MyalgicE #PwME #CFSME
@mecfs
6/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by reposting and/or liking
Day #6
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #CFSME #MEeps @mecfs
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by reposting and/or liking this image.
Day 1
"ME/CFS Isn't Just Misunderstood, It's Actively Neglected"
https://www.popsugar.com/fitness/mecfs-post-covid-49344168
'Beth Pardo is among the people who developed ME/CFS after contracting COVID.' 'Pardo went from running ultramarathons to being unable to leave her bed'
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME @longcovid
#LongCovid #PwLC
Dr Speight's 5 free Irish ME/CFS talks in #Cork/ #Dublin/ #Galway/ #Limerick/ #Sligo, May 2024:
https://irishmecfs.org/blog/dr-speights-5-free-irish-mecfs-talks-in-corkdublingalwaylimericksligo-may-2024-plus-he-is-seeing-patients-aged-20-or-younger-for-free-while-he-is-in-ireland
Plus he is seeing patients aged 20 or younger for free while he is in Ireland.
Please share widely, tag others, etc.
#MEcfs #CFS #PwME
@mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME #ME #MyE #millionsmissing #EndMECFS #MECFSNews #MEpvs #MEpostviralsyndrome
2/
On people with #mecfs:
“The layers of their life often strip away like paint, and a first casualty is often their job and whatever worth they got from it. If they are lucky, they have the assistance of a family. If unlucky, they battle in solitude”
@mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #MyE #ME #millionsmissing #CFSME #CFIDS
#SEID #NeuroME
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Identification of CD8 T-cell dysfunction associated with symptoms in #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome (#MECFS) & #LongCOVID and treatment with a nebulized antioxidant/anti-pathogen agent in a retrospective case series
Free
https://www.sciencedirect.com/science/article/pii/S2666354623001345
@mecfs #CFS #PwME #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME #ME #MyE @longcovid
#LongCovid #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #PASC
Identification of CD8 T-cell dysfunction associated with symptoms in #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome (#MECFS) & #LongCOVID and treatment with a nebulized antioxidant/anti-pathogen agent in a retrospective case series
Free
https://www.sciencedirect.com/science/article/pii/S2666354623001345
@longcovid
#LongCovid #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #PASC
#MEcfs #CFS #PwME #MyalgicE #CFSME
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2/
Maeve Boothby-O'Neill died aged 27 at home in Exeter in October 2021. A recent legal hearing into Maeve's death heard there was a gap in NHS services for severely ill ME patients."
3-minute TV clip:
https://youtu.be/pkyU41BHgnM?si=z9-2HJAx710bqfRq
@mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #MyE #ME #millionsmissing #CFSME #CFIDS
#SEID #NeuroME #EndMECFS #SystemicExertionIntoleranceDisease
#MEawareness #livingwithME #CanYouSeeMENow
BBC Radio Devon & BBC news article
Daughter's death 'could have been avoided'
"The mother of a woman who died after being discharged from hospital with #MyalgicEncephalomyelitis says the NHS has no way to treat the condition (contd)”
https://www.bbc.co.uk/news/uk-england-devon-67748453
@mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #MyE #ME #millionsmissing #CFSME #CFIDS
#SEID #NeuroME #EndMECFS
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“Living with chronic fatigue syndrome (CFS) is like being erased. It rubs out what my brain and body can do, turning me into a reduced version of myself.”
“Having CFS is like being a dormant seed, waiting for just enough energy to come alive.”
@mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #MyE #ME #millionsmissing #CFSME #CFIDS
#SEID #NeuroME #EndMECFS #SystemicExertionIntoleranceDisease
#MEawareness #livingwithME #CanYouSeeMENow
